There really is hope for those of use with Chronic Lyme, As of right now, my family has a 75% success rate!!! Yesterday was my kids’ LLMD (Lyme-Literate Medical Doctor) appointment. They have been seeing Dr. B for4 1/2 years now. But yes, there is a light at the end of the tunnel! Both kids were diagnosed in 2008 with Late Stage (most likely congenital) Lyme Disease, Bartonella, Babesia and Ehrlichia. Four and half years of meds, supplements, blood draws and doctors appointments with 2 hours of driving each way. The last time they saw Dr B was in June and they had reported little to no symptoms. We felt that the next step was to put them on a lose maintenance dose of minocycline and see how they did. Now in October, they are symptom-free and feeling pretty darn good about it! They are have had their minocycline doses reduced even further and will be going back in another four months. If they stay symptom free, we get to say good bye to antibiotics!
I have to say, its kinda scary to think about them not being on any meds or treatment plans.In some ways the abx have felt like a safety net; if they got bit by a tick, they would have some protection. I guess I am going to be a bit neurotic about tick checks again.
That makes 3 out of 4 family members who can say that they are feeling better then they have in a long time and that Lyme is NOT going to get the best of them. That gives me hope- hope that Gary will someday will join the ranks of us who have Hope after Lyme.